“Just so everyone is aware, there is a bunch of misleading info being spread around re: ALS research - the “27%” figure is based on previous years’ annual funding; furthermore, the remainder goes to improving the quality of life of those suffering from ALS. Given that the annual funding is approximately 16M, that’s just over 4M spent on decreasing their suffering. It isn’t greed, it’s a lack of money.”
Shut up already.
And the next time you start to complain about a charity either a) working on multiple fronts (because that’s what ALSA does—both seeking a cure and helping people suffering now) or b) daring to have administration expenses—let’s see how long you can last, much less tackle a cause, without printer paper and an internet connection.
As someone who has watched a family member die from a neuro-degenerative disease; funding to develop better wheelchairs and bedsore creams is *just* as important as funding research to cure the disease itself…
A friend of mine posted an update from one of HER friends to FB earlier. Her dad has ALS. The ALS foundation came out to see if they could put in a ramp for his wheelchair, but they couldn’t afford it because of the kind of ramp he needed for the kind of house they had.
This week they called back and said hey, the thing is, we suddenly have a bunch of money, so we’re coming out to build that ramp. And they did. She posted pics.
So if you feel like bitching about the ice bucket challenge…reconsider.
Strange Marine Creature
This strange creature was filmed underwater by drillers in the deep ocean. It is called Deepstaria enigmatica. It looks like an underwater dementor.
James Lopez is a veteran Disney animator (The Lion King, Pocahontas, Paperman) who is trying to raise funding for his primarily hand-drawn short film, Hullabaloo, with hopes of eventually finding a studio to fund a full-length version.
From the film’s IndieGo page:
Hullabaloo is the story of Veronica Daring, a brilliant young scientist who returns home from an elite finishing school to find her father—the eccentric inventor Jonathan Daring—missing without a trace! The only clue left behind points Veronica toward Daring Adventures, an abandoned amusement park used by her father to test his fantastical steam-powered inventions. There she discovers a strange girl named Jules, a fellow inventor who agrees to help Veronica in locating her missing father and discovering the secrets of his work.
In addition to helping save 2D animation, Hullabaloo aims to encourage girls to explore science and adventure. The film’s two protagonists are both young women and both scientists who use their intellect, wits, and courage to fight greed and corruption. We hope that Veronica Daring and her friend Jules will serve as positive role models for girls of all ages and encourage them to get excited about science, engineering, and sci-fi.
To see some footage and a short video pitch from Lopez, click here.
Lillian Weber, a 99-year-old good Samaritan from Iowa, has spent the last few years sewing a dress a day for the Little Dresses For Africa charity, a Christian organization that distributes dresses to children in need in Africa and elsewhere.
Weber’s goal is to make 1,000 dresses by the time she turns 100 on May 6th. So far, she’s made more than 840. Though she says she could make two a day, she only makes one – but each single dress she makes per day is personalized with careful stitchwork. She hopes that each little girl who receives her dress can take pride in her new garment.
"I am Groot" ♡